Jena, 05.05.2026 – To raise awareness for the severe neuroimmunological disease ME/CFS, a so-called #LiegendDemo will take place on Tuesday, May 12, at the Jena Holzmarkt. The action is aimed at the general public as well as political decision-makers and is intended to make the drastic physical limitations of those affected visible in public spaces.
- What: #LiegendDemo for ME Awareness Day 2026
- When: Tuesday, May 12, 2026, from 15:30 to 16:30
- Where: Holzmarkt, Jena
- Organizer: Initiative #LiegendDemo
Action for more visibility and inclusion
On the international day of action for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), the #LiegendDemo initiative calls for a special assembly in Jena city center. The aim of the demonstration is to create awareness for the harsh reality of life for those suffering from the disease. The information and protest action is aimed not only at the Jena city community but also specifically at relatives, healthcare professionals, and political decision-makers.
Background on the disease ME/CFS
ME/CFS is a severe, often insufficiently understood neuroimmunological disease that massively restricts the daily lives of patients and leads to a high degree of physical disability. The quality of life of those affected is usually drastically reduced. According to estimates, a quarter of all patients can no longer leave their own homes. Many of them are permanently bedridden, and over 60 percent are considered unable to work. The form of the #LiegendDemo addresses this circumstance both symbolically and practically, as long periods of standing or sitting are simply impossible for many affected individuals due to so-called Post-Exertional Malaise (PEM).
Background knowledge: Holzmarkt as a central place of protest
Alongside the historical Marktplatz, Holzmarkt is one of the most important central hubs in Jena city center. Due to its location as a direct axis for pedestrians and local public transport (trams), the square offers extremely high visibility for demonstrations, rallies, and information stands. Since the #LiegendDemo initiative specifically wants to reach the general public, this location guarantees a high frequency of passers-by and thus maximum attention for the largely invisible clinical picture.
Source:
ME Awareness Days 2026
Transparency note: This article was created automatically, editorially reviewed, and expanded with AI support.